Patient Stories with Grey Genetics

By Grey Genetics

Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.

  1. 1.
    Patient Stories is taking a hiatus…. Please take 1 minute to answer our survey!
    0:50
  2. 2.
    Cancer, Genomics, and The Weight of Many Decisions
    48:06
  3. 3.
    A Roll of the Dice
    41:20
  4. 4.
    A Mother's Journey with Sickle Cell Disease
    46:59
  5. 5.
    Far Away with Fabry
    26:53
  6. 6.
    Epidermolysis Bullosa: Great Pain and Gigantic Love
    44:57
  7. 7.
    The Loneliness of Living with Von Hippel-Lindau Syndrome
    55:19
  8. 8.
    Changing the Narrative for Trisomy 18
    1:06:09
  1. 9.
    Finding Support for Unexpected DNA Discoveries
    35:40
  2. 10.
    A Long Diagnostic Odyssey to Ehlers-Danlos Syndrome
    33:54
  3. 11.
    Pancreatic and GI Cancer Genetic Counseling
    38:07
  4. 12.
    Finding Your Voice Through Dravet Syndrome
    1:17:25
  5. 13.
    Family History 2.0
    41:57
  6. 14.
    Psychiatric Genetic Counseling
    31:25
  7. 15.
    Reaching New Heights with Hemophilia
    38:41
  8. 16.
    Slowing Down with Mitochondrial Myopathy
    27:47
  9. 17.
    Lucas & Menkes Disease: From Diagnosis Day to The Disorder Channel
    44:26
  10. 18.
    Learning Compassion through Rett Syndrome
    1:19:54
  11. 19.
    Not Parent Expected (NPE): The Untethering & My Own Story
    42:53
  12. 20.
    Once Upon a Gene: "A Little Love"
    27:04
  13. 21.
    Confronting Ageism with Lynch Syndrome
    47:50
  14. 22.
    Androgen Insensitivity Syndrome (AIS): Finding Self-Acceptance and Connection
    31:11
  15. 23.
    Representation Matters: Increasing Diversity within Genetic Counseling
    31:06
  16. 24.
    Patient Stories is taking a hiatus…. Second Season to come in July!
    1:21
  17. 25.
    Between Worlds: Usher syndrome type III
    54:21
  18. 26.
    Talking about Prader-Willi syndrome with the host of Walking with Freya
    39:16
  19. 27.
    Becoming BRCAStrong
    58:31
  20. 28.
    Sandhoff Disease & A Spirit That Lives On
    44:33
  21. 29.
    A Later Abortion Story
    1:31:26
  22. 30.
    Walking with Freya: "Ep 53: Eleanor and Grey Genetics"
    45:26
  23. 31.
    Unexpected Joys on the Scenic Route with Down Syndrome
    56:01
  24. 32.
    Down Syndrome & Adoption as an Option
    1:07:04
  25. 33.
    Patient Stories is taking a holiday break. More episodes in 2020!
    3:26
  26. 34.
    She with Lynch
    1:06:42
  27. 35.
    Family Health History and a Missed Diagnosis of Lynch Syndrome
    39:40
  28. 36.
    Not Parent Expected (NPE): DNA, Identity, and Changing Family History
    31:37
  29. 37.
    Beyond Survivorship: A Fresh Chapter
    32:25
  30. 38.
    Losing, Living, and Laughing
    28:11
  31. 39.
    Black and BRCA Positive
    48:23
  32. 40.
    DNA Today, Episode #173: "Eleanor Griffith on Grey Genetics"
    31:15
  33. 41.
    Resurrection Lily: A BRCA Memoir
    57:42
  34. 42.
    A Short Life with Tay Sachs & Advocating for Preconceptual Carrier Screening
    44:46
  35. 43.
    Can 23andMe Have It Both Ways?
    53:34
  36. 44.
    Living a Full Life with SMA Type 2
    53:37
  37. 45.
    A Window into Cri du Chat
    48:31
  38. 46.
    Newborn Screening and Support for Glutaric Acidemia Type 1 (GA-1)
    40:44
  39. 47.
    Fragile X: The Leading Genetic Cause of Autism
    1:02:45
  40. 48.
    Wilson Disease: When early diagnosis makes all the difference
    30:45
  41. 49.
    Men Get Breast Cancer Too!
    58:25
  42. 50.
    “I have FH, FH doesn’t have me!”
    29:34

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