Rare Perspectives

Patient Services Incorporated

Since 1989, Patient Services Incorporated has restored hope and health to chronic and rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis and explore the heart of the experience. Our goal is to shed light on the paths that patients walk and highlight different perspectives. We hope their stories help to educate you about chronic illness.

All Episodes

Do you need a little motivation? Inspiration? On this episode of the Rare Perspectives podcast, we certainly felt both motivated and inspired after speaking with returning guest Jordan Martin, Hemophilia B patient, personal trainer, state champion wrestler, and inspirational voice in the chronic disease community. Tune in for some words of wisdom from Jordan. We hope you enjoy! Please share with your family, friends and network. We also invite you to write a review and follow the podcast! Stay Connected with PSI: Facebook: www.facebook.com/PSI4Patients/ Twitter: www.twitter.com/PSI4Patients LinkedIn: www.linkedin.com/company/patient-services-inc Instagram: www.instagram.com/psi4patients Are you or someone you know living with a chronic illness and in need of financial assistance? Visit: www.patientservicesinc.org

Sep 2020

1 hr 5 min

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience! On this episode, we are honored to welcome PSI’s new CEO, Gwen Cooper. As CEO of PSI, Cooper brings over 20 years of executive nonprofit experience in all facets of healthcare, from leading statewide voluntary health organization fundraising and advocacy platforms to serving as an executive in provider delivery systems. We do hope you enjoy our conversation. Please share with your family, friends and network. We also invite you to write a review. Together, let's reach the world, inspire others, and help make a difference for those within as well as outside the rare disease community. Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Aug 2020

39 min 13 sec

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience! On this episode, we welcome Amy Jackson who serves as a PSI patient access specialist. Listen in as Amy answers some of the most commonly asked questions about insurance coverage. You won't want to miss this important episode. We do hope you enjoy our conversation. Please share with your family, friends and network. We also invite you to write a review. Together, let's reach the world, inspire others, and help make a difference for those within as well as outside the rare disease community. Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Aug 2020

33 min 25 sec

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience! On this episode, we welcome our dear friend Lisa Wright back to the Rare Perspectives podcast to share her story. At the age of 49, Lisa’s lifelong mystery had finally been solved. It was just 10 months earlier that her twin sister was diagnosed with the very same rare disease. And although the discovery has brought closure to so many unanswered questions, it has also led to a thousand more. We hope you enjoy our conversation. Please share with your family, friends and network. We also invite you to write a review. Together, let's reach the world, inspire others, and help make a difference for those within as well as outside the rare disease community. Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Jul 2020

43 min 10 sec

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience! This week on Rare Perspectives, we caught up with PSI’s Nathan Thomson, who works with our Government relations and advocacy team. In this episode, you’ll get to learn more about not only who Nathan is and what brought him to PSI, but also about a very critical piece of legislation that we need your help with. You can take action here: https://bit.ly/2BiZppQ We hope you enjoy! Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Jul 2020

18 min 45 sec

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience! On this episode, our dear friend, Amee Ireland, PSI patient and advocate returns to the podcast to discuss life at home, her diagnosis, and how she saved her son's life, which led to his diagnosis of HAE, as well. Amee is a bright light in this world who shines a light on hope for all to see from within the rare disease community and out. We hope you enjoy! Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Jul 2020

34 min 17 sec

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience! On this episode, meet Bill Bellnap. At 76, Bill was recently diagnosed with Idiopathic Pulmonary Fibrosis. But Bill is not alone. Surrounded by his wife of 52 years and his loving family, Bill has all he needs to fight this battle. On this episode of Rare Perspectives, we invite you, the listener, into a conversation about life, love, rare disease, patient assistant charities, and so much more. We hope you enjoy our conversation. Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice. Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Instagram: instagram.com/psi4patiuents Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Jul 2020

40 min 26 sec

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience! On this episode, meet Tony Castaldo. Tony is a co-founder of HAEi and has been President since the organization’s inception. He also serves as the President of the US HAE Association and on the Board of Directors of the National Organization for Rare Diseases. He dedicated much of his life to driving improvement in HAE care and remains highly motivated by the challenge of global HAE advocacy. We hope you enjoy our conversation. Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice. Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Instagram: instagram.com/psi4patiuents Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Jun 2020

36 min 9 sec

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience! On this episode, we conclude our conversation with Broadway actor Matthew Farcher (Pretty Woman Broadway Production, Beauty and the Beast National Tour) as he shares his rare perspective on living life with rare disease and how his diagnosis story has informed his life and career. During our conversation, Matthew shares with us about how he learned of his rare disease, his acting career, baseball, and the power of family. This is part two of a two part series with Matt. We hope you enjoy our conversation. Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice. Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Instagram: instagram.com/psi4patiuents Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Jun 2020

31 min 12 sec

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience! On this episode, meet Broadway actor Matthew Farcher (Pretty Woman Broadway Production, Beauty and the Beast National Tour) as he shares his rare perspective on living life with rare disease and how his diagnosis story has informed his life and career. During our conversation, Matthew shares with us about how he learned of his rare disease, his acting career, baseball, and the power of family. This is part one of a two part series with Matt. We hope you enjoy our conversation. Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice. Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Instagram: instagram.com/psi4patiuents Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Jun 2020

28 min 57 sec

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience! On this episode, we continue our conversation with 32 year old fitness coach Jordan Martin. At the age of 9, Jordan was diagnosed with Hemophilia B. Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice. Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Instagram: instagram.com/psi4patiuents Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

May 2020

25 min 48 sec

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience! On this episode, meet 32 year old fitness coach Jordan Martin. At the age of 9, Jordan was diagnosed with Hemophilia B. This is part one of a two part conversation we recently had with Jordan. Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice. Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Instagram: instagram.com/psi4patiuents Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

May 2020

41 min 41 sec

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience! On this episode, meet Jamie Koll. In this episode you will be inspired by Jamie as she shares her rare perspective on living life with rare disease as well as that knowledge is power, the importance of connecting with others, finding your support system, and that you’re not in this alone. We hope you enjoy our conversation. Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice. Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Instagram: instagram.com/psi4patiuents Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Apr 2020

27 min 11 sec