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TSC Talks!

By Jill Woodworth

A podcast for those affected by Tuberous Sclerosis Complex, a rare disease that causes benign tumors to grow in different organs of the body. As a parent of several children affected, I'm interviewing others affected, whether having TSC themselves, a parent or caregiver or healthcare professional, social worker, etc. By hearing other's voices and experiences with managing this disease, we can find better treatments, support each other more effectively, raise awareness of this condition and contribute to finding a cure.

  1. 1.
    TSC TALKS, Episode 21; A Moment with MaryEllen Lacy, 22 year old with TSC; Update on Shared Living Sitch, New Program, ETC12/17/2018
    13:19
  2. 2.
    TSC TALKS, Episode 20; "Strange Things", aka Infantile Spasms in TSC with Tarra Hassin. A Primer on Perseverance, Perception and Acceptance12/09/2018
    51:00
  3. 3.
    TSC TALKS, Episode 19; Shannon Grandia, TSC Mom, Spouse, Advocate & Teacher; Finding Joy on the TSC Path12/03/2018
    47:10
  4. 4.
    TSC TALKS Episode 18, Claire Despres, Shared Living Provider for MaryEllen Lacy, young adult with TSC11/29/2018
    32:46
  5. 5.
    TSC TALKS, Episode 17; Going Local! Finding the Middle Ground in Special Education with Stacey Jackson11/15/2018
    57:15
  6. 6.
    TSC TALKS. Episode 16; Hope WINS! Meghan Wilson, Cameran & TeamCamBam11/07/2018
    30:24
  7. 7.
    TSC TALKS: Episode 15, Jill Talks: Team TSC and the big RACE! with guest host, Dorina Leslie10/23/2018
    29:41
  8. 8.
    TSC Talks: Episode 14, Kristina, Occupational Therapist, "The Importance of Hope in Early Intervention Services"10/17/2018
    20:13

Listen to TSC Talks! now.

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