Made Visible

Harper Spero

Made Visible is a podcast that gives a voice to people with invisible illnesses. This podcast aims to change the conversation around invisible illnesses, helping those who experience them —whether as patients, caregivers, or friends or family members — feel more seen and heard.

All Episodes

For creative arts therapist Stephanie Omens, it’s all about storytelling--even in the most challenging of circumstances. She works with children who have illnesses or who have parents or siblings who are ill, and it’s her job to help them understand what they’re experiencing. On today’s episode, Stephanie talks about why white lies don’t serve kids and why truth telling empowers them, how she uses story and play in her practice, and how she’s helping kids and parents understand life during the pandemic.  Learn more about Stephanie and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here.  Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

Sep 22

40 min

When she was 15, Tricia Huffman made a big decision--she wanted to move through life in a different way. On today’s episode, Tricia and I talk about this choice, which was wrapped up in the emotional and physical pain of her then-undiagnosed invisible illness. We also discuss her eventual diagnosis of fibromyalgia, and how she managed her condition while working as a touring sound engineer. Finally, we talk about why “should” isn’t in her vocab, and why she wants to remind us to claim our joy. Learn more about Tricia and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here.  Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

Sep 15

44 min

Since Pamela Hunter’s daughter Ransom was diagnosed with sensory processing disorder at age two-and-a-half, Pamela has done everything she can to get her daughter the help she needs. On today’s episode, we talk about what it means to be a parent to a child with this condition. We also talk about how difficult moments have given Pamela the conviction to stick with her gut, and how Ransom’s story also led Pamela to found Sheltered.Co --a company selling handwoven weighted blankets made from deadstock.  Learn more about Pamela and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here.  Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

Sep 8

61 min

Fans know Este Haim for her ability to hold a killer baseline as part of HAIM, a band she formed with her two sisters, Danielle and Alana. Less well-known is the fact that Este was diagnosed with Type 1 diabetes in high school. On today’s episode, Este talks about how having a supportive family has meant that diabetes and music can always coexist in her life. We also talk about how Este manages her physical and mental health (especially while touring), and HAIM’s latest album, Women In Music Pt. III.  Learn more about Este and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here.  Support for this episode comes from Lily CBD. Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Click here to try Lily CBD for yourself and use code madevisible at checkout for 15% off your first purchase.

Sep 1

47 min

Jen Pastiloff has built her identity and career around connecting with people. She also has profound hearing loss and tinnitus and is deaf without her hearing aids. As a result, she’s had to cultivate other ways of understanding and hearing. On today’s episode, Jen and I talk about the specific challenges that come with tinnitus and hearing loss, the assumptions people make if they don’t know that she’s hard of hearing, and how a sense of courageousness helped her carve out a space to truly be herself.  This episode previously aired on October 23, 2018.  Learn more about Jen and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here. 

Aug 25

47 min

After Sonali Gupta was diagnosed with limb-girdle muscular dystrophy in 2008, she went on a trip to India with her dad to explore options for healing. As an NYU grad, Sonali had been eyeing a career in the music industry, but she found a health journey in India instead. She now lives in Mumbai, and is writing a memoir about this experience. On today’s episode, Sonali and I talk about what that trip with her dad was like, how being aware of her needs gives her independence, and her identity as a writer.   Learn more about Sonali and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here.  Support for this episode comes from Lily CBD. Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Click here to try Lily CBD for yourself and use code madevisible for 15% off your first purchase.

Aug 18

35 min

Mira Mariah thinks tattoos are rock 'n' roll, and so are disabled people. As she says, disabled people have to be really “innovative and creative”--and what’s more rock 'n' roll than that? Though Mira didn’t always associate with the word “disabled,” that sense of herself shifted once she had amputation surgery and got a prosthetic leg. On today’s episode, I talk with Mira about fashion’s role in her life, the invisible challenges that amputees face, her career as a tattoo artist, and leaning in to joy.  Learn more about Mira Mariah and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here.  Support for this episode comes from Lily CBD. Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Click here to try Lily CBD for yourself and use code madevisible for 15% off your first purchase.

Aug 11

31 min

For Quentin Vennie, despite having been diagnosed with acute anxiety and depression at 14, this wasn’t the focus as he grew up. The focus was on surviving, given that he lived in one of the most dangerous cities in America, had to contend with racism and prejudice, and lived in communities with limited resources. On today’s episode, I talk with Quentin about his decision to fight to live, why gardening is his “secret weapon” for his mental health, and how vulnerability helps remind him of his purpose.  Learn more about Quentin and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here.  Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

Aug 4

42 min

When Devri Velazquez was diagnosed with Takayasu's arteritis at 20 years old, the prognosis was devastating. Doctors didn’t think she would live to age 21. On today’s episode, we talk about what Devri’s life looks like now, ten years after her diagnosis, and what it was like to hear such a scary prognosis when she was first diagnosed. We also talk about why, today, managing her physical stress and setting boundaries is so important, and how owning her identity is so central to the advocacy work she does.  Learn more about Devri and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here.  Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

Jul 28

39 min

Nikki Boyer put it best, when talking about her relationship with her best friend Molly: “We’re going to say the things that people don’t say.” On today’s episode, Nikki and I talk about “Dying for Sex,” the podcast she and Molly created to tell Molly’s story of navigating terminal cancer while also embracing sexual adventures. We also dig into the complicated and layered nature of caregiving, and talk about the profound ripple effect of Molly’s story and how it has helped Nikki keep Molly close.  Learn more about Nikki and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here.  Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

Jul 21

46 min

Jenn Donohue and her husband’s twins were born at 24 weeks, making them four months premature. On today’s episode, Jenn and I talk about how she and her husband navigated the “start and stop” feeling as they navigated their son’s health while also coping with the loss of their daughter, who passed away at one week old. We also talk about what the role of caregiving means to Jenn, and how she and her husband support their teenage son and the invisible challenges he faces due to complications from birth. Learn more about Jenn and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here.  Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

Jul 14

32 min

Dr. Alexandra Freeman is an infectious diseases physician at the National Institutes of Health, and as she explains, there are still a lot of unanswered questions about COVID-19. Dr. Freeman first spoke on Episode #24, and I wanted to have her back to talk about what the pandemic has been like for her and her patients, who are people with primary immunodeficiencies (like me). On today’s episode, we talk about the “new normal,” antibody testing, and possibilities for vaccine distribution.  Learn more about Dr. Freeman and check out the show notes here. Check out her original episode here.  Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here.  Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible.      

Jul 7

38 min

Sarah Ramey has a term for people like her. She calls herself a WOMI, or a “woman with a mysterious illness.” On today’s episode, Sarah tells me about the events that set her life as a WOMI in motion, and what it was like to be told over and over that her problems were psychosomatic. We also discuss her recently published book, The Lady’s Handbook for Her Mysterious Illness, and how she hopes it will change the experience for other patients with mysterious illnesses as they seek answers. Learn more about Sarah and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here. 

May 7

41 min

Alisa Vitti wrote the book on women’s hormonal health--literally. WomanCode, her first book, was published in 2013, and it provides the education many women never knew they needed. A women’s hormone and functional nutrition expert, Alisa is the founder of FLOLiving.com. On today’s episode, we talk about her new book, how she developed the basis for the FLO Protocol through her experience with PCOS, and why she doesn’t buy into the narrative that women should accept pain and suffer in silence. Learn more about Alisa and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here. 

Apr 30

42 min

John Boyle was diagnosed with X-linked agammaglobulinemia (XLA) in 1978, when he was just six months old. On today’s episode, John and I talk about the routine management of his condition that allows him to live with minimal symptoms, and how taking care of his health was instilled in him at an early age. We also talk about his work with the Immune Deficiency Foundation, and why, after years of being attuned to his physical health, he realized it was time to give some attention to his mental health, too.  Learn more about John and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here. 

Apr 23

36 min

As a clinical psychologist at the National Institute of Mental Health, Dr. Krystal Lewis is interested in how to make therapy, specifically cognitive behavioral therapy (CBT), more effective for children and adolescents.On today’s episode, Krystal and I talk about what led to her interest in psychology, and how CBT can treat anxiety and increase resilience. Then, we shift to the COVID-19 pandemic: how it’s affecting people on an emotional level and how principles from CBT can help us during this time.  Learn more about Krystal and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here. 

Apr 16

36 min

Right now, ban.do founder and CCO Jen Gotch was supposed to be on tour for her first book, “The Upside of Being Down.” But because of the coronavirus pandemic, the tour was cancelled. While she did feel sadness about that, as Jen says, her knee-jerk reaction when most things happen is, “this is going to be okay.” On today’s episode, Jen and I talk about the meaning of that phrase and the power of optimism, why she doesn’t feel the stigma of mental illness, and how she’s choosing to get the news these days. Learn more about Jen and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here. 

Apr 9

47 min

Like others with compromised immune systems, Jodi Taub’s life is at risk due to COVID-19. Jodi was diagnosed with primary immunodeficiency around 14 years ago, and she manages about 22 different health conditions as a result. On today’s episode, Jodi and I talk about recognizing that she felt unsafe in NYC, and what her new normal looks like. We also talk about how, as a psychotherapist, she’s helping clients with chronic illness navigate the emotional shifts and trauma that this pandemic has created.  Learn more about Jodi and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here. 

Apr 2

34 min

The coronavirus pandemic has changed life as we know it. This crisis is a scary time for all of us, and it presents unique challenges for the invisible illness community. For this episode of Made Visible, we reached out to past podcast guests to hear how coronavirus is impacting their lives. As we face an era of physical distancing and isolation, we believe it’s more important than ever to connect with our community and hear their stories. We want to hear yours, too: https://www.speakpipe.com/MadeVisible. 

Mar 31

43 min

The coronavirus pandemic has changed life as we know it. This crisis is a scary time for all of us, and it presents unique challenges for the invisible illness community. For this episode of Made Visible, we reached out to past podcast guests to hear how coronavirus is impacting their lives. As we face an era of physical distancing and isolation, we believe it’s more important than ever to connect with our community and hear their stories. We want to hear yours, too: https://www.speakpipe.com/MadeVisible.  Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here. 

Mar 19

41 min

On today’s episode, we’re covering the recent coronavirus outbreak and the impact that global health challenges can have on people with invisible and chronic illnesses. To get expert perspectives, I spoke with Hernando Garzon, MD, an emergency medicine physician with experience in disaster response and global health; Andrew Kessler, founder of Scough, a company that makes scarves and bandanas that function as masks; and John Boyle, president and CEO of the Immune Deficiency Foundation.  Learn more about Hernando, Andrew and John and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here.  Want to ask our host, Harper Spero a question? Send a voice memo here! 

Mar 10

36 min

As an officer in the Marine Corps, Zach Iscol was mentored by people who emphasized the importance of taking care of your people...and that lesson came home with him. After his service ended, he saw the heavy toll of PTSD and other military-related trauma on veterans. In particular, the suicide rate among veterans drove him to action. On today’s episode, Zach and I talk about how the Headstrong Project removes barriers for veterans seeking care, and the impact it’s had for over 1,500 veterans in 7 years.  Learn more about Zach and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here. 

Mar 3

25 min

When Aliza Licht was diagnosed with breast cancer in 2015, she didn’t tell anyone but close family. That changed in 2019, when she agreed to share her story in a TV segment for abc7NY. Only today’s episode, Aliza and I talk about why, after keeping her story to herself for so long, she decided she wanted people to know the facts of her diagnosis. We also chat about how life has changed for her since cancer happened, and why she thinks everyone has a responsibility to take the initiative in their health.  Learn more about Aliza and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here. 

Feb 25

27 min

Before being diagnosed with Ehlers-Danlos syndrome at 24 years old, Lara Bloom endured 12 years of undiagnosed pain and mysterious symptoms. According to Lara, who is now the president and CEO of The Ehlers-Danlos Society, this experience isn’t uncommon. On today’s episode, Lara and I talk about why she’s dedicated her career to EDS awareness, why it’s important to her that The Ehlers-Danlos Society is in it for the long haul, and how her life changed when she stopped waiting for a cure for EDS.  Learn more about Lara and check out the show notes here. Follow Made Visible on Instagram. We want to learn more about you! Tell us about you and what got you listening to Made Visible here. 

Feb 18

38 min

When Shannon Shores was diagnosed with a strain of HPV that can cause cervical cancer, it was an emotional and scary experience. But at the same time, it helped cement her new career path, validating her decision to build a product that would offer discreet and fast STD testing to people all over the country. On today’s episode, we talk about how education and empowerment factor into the mission of samedaystdtesting.com, and why shame and judgement don’t belong in conversations around sexual health. Learn more about Shannon and check out the show notes here. Follow Made Visible on Instagram. Provide us with feedback on the podcast here. 

Feb 11

36 min

Dr. Shari Auth has been a healer for over 20 years. Now, as co-founder of WTHN, she’s helped thousands of people experience their first acupuncture treatment. On today’s episode, we discuss why many people no longer see holistic medicine as a last resort, but instead view it as a first stop. We also talk about how WTHN makes acupuncture, herbs, and cupping accessible for a larger audience, the symptoms people seek to alleviate through acupuncture, and why regular wellness treatments are key. Learn more about Shari and check out the show notes here. Follow Made Visible on Instagram. Provide us with feedback on the podcast here. 

Feb 4

30 min

YouTubers Simon and Martina Stawski share many aspects of their lives with their audience, including how they approach Martina’s diagnosis of Ehlers-Danlos syndrome (EDS). On today’s episode, I talk with Simon and Martina about how honest conversation plays a huge role in their team effort to manage EDS. We also talk about the ups and downs of managing a chronic illness, what they choose to share with their fans, and why the term “caregiver” doesn’t feel like the right way to describe Simon’s role.  Learn more about Allie and check out the show notes here. Follow Made Visible on Instagram. Provide us with feedback on the podcast here. 

Jan 28

51 min

As deputy editor at Health.com, Esther Crain has developed features that reflect the hidden health experiences of people today. Focusing on women who have been misdiagnosed or diagnosed with invisible illnesses, she looks for stories that are relatable and help shine a light on different conditions and experiences with healthcare. On today’s episode, we talk about what led to her interest in health publishing, the power of personal narrative, and how the humanity in stories can make them hit home.  Learn more about Esther and check out the show notes here. Follow Made Visible on Instagram. Provide us with feedback on the podcast here. 

Jan 21

29 min

For the first few months after she was diagnosed with multiple sclerosis, Jessie Ace felt like her life was over. But, as she learned how to advocate for herself as a patient and reframe her mindset, her experience changed. On today’s episode, Jessie and I talk about what it was like to be diagnosed at age 22 and how she felt when she was suddenly labeled as having a disability. We also chat about her work as an illustrator, writer, and podcast host, and why she champions the term “enabled” vs. disabled. Learn more about Jessie and check out the show notes here. Follow Made Visible on Instagram. Provide us with feedback on the podcast here. 

Jan 14

34 min

Lara Parker deals with vagina problems (which is also the title of her book, coming in 2020). On today’s episode, Lara I talk about why she started being upfront and open about how endometriosis and other conditions have affected her life, and why she feels a responsibility to tell her story. Whether she’s talking about dating with penetrative sex off the table or giving advice to people who are navigating endometriosis, Lara talks candidly about her experience...because as she puts it, why wouldn’t she?  Learn more about Lara and check out the show notes here. Follow Made Visible on Instagram. Provide us with feedback on the podcast here. 

Jan 7

33 min

At age 26, Mickey Trescott had been diagnosed with both Hashimoto’s thyroiditis and celiac disease. With her symptoms becoming increasingly unmanageable, she decided to take her health into her own hands. On today’s episode, Mickey and I talk about her drive to learn about the impact of diet on autoimmune conditions, the role that experimenting with diet has played in her health, and why educating people about the Autoimmune Protocol--which she calls a template, not a diet--is so important to her. Learn more about Mickey and check out the show notes here. Follow Made Visible on Instagram. Provide us with feedback on the podcast here. 

Dec 2019

49 min

Molly O’Malley Pitman’s son was diagnosed with autism before he was two years old. For Molly and her husband, the diagnosis was devastating, but it also gave her something to fight for. On today’s episode, Molly and I talk about how losing many family members to Huntington’s disease has influenced her life’s purpose, and how she aims to honor her family. We also talk about how her son’s life is impacted by his diagnosis, and her decision to start an activity center and preschool for kids of all abilities.  Learn more about Molly and check out the show notes here. Follow Made Visible on Instagram.   Provide us with feedback on the podcast here. 

Dec 2019

39 min

Katie Dalebout and Serena Wolf have embraced vulnerability when it comes to living with anxiety. They’re the hosts of Spiraling, dubbed an “optimistic” anxiety podcast, and they talk openly with me about what it means for them to live with anxiety, how they cultivate awareness around their mental health, and what strategies they’ve developed (or are in the process of developing) to manage day-to-day moments with anxiety. This episode features tons of laughs and relatable moments of anxiety real talk. Learn more about Katie and Serena and check out the show notes here. Follow Made Visible on Instagram. Join our online community here. Provide us with feedback on the podcast here. 

Dec 2019

60 min

For Elana Safar, navigating the world isn’t always simple. That’s because she has multiple chemical sensitivity (MCS), a condition where the body reacts to chemicals often found in perfumes, deodorants, cleaning solutions, and beyond. On today’s episode, Elana and I talk about the physical symptoms of MCS and how the condition impacts her day-to-day life. We also discuss why it’s uniquely hard to ask people to stop using perfumes, and her hope that, one day, fragrance-free spaces will be the norm.  Learn more about Elana and check out the show notes here. Follow Made Visible on Instagram. Join our online community here. Provide us with feedback on the podcast here. 

Nov 2019

32 min

Amy Lacey created a cauliflower crust in her kitchen after deciding she would need to make nutrition changes to manage her lupus diagnosis. On today’s episode, Amy and I talk about the physical and emotional challenges that her health presented, and how inventing a tasty, healthy pizza crust that she and her family could enjoy helped restore “normalcy” in her life. We also talk about the path to starting her business, Cali'flour Foods, and what’s next now that the company has seen such successful growth.  Learn more about Amy and check out the show notes here. Follow Made Visible on Instagram. Join our online community here. Provide us with feedback on the podcast here. 

Nov 2019

39 min

Developed at Columbia University in 2000, narrative medicine isn’t quite like any other discipline out there. On today’s episode, I talk with Catherine Rogers and Ben Samuel, who both teach writing in the Program in Narrative Medicine at Columbia. We discuss what students learn in narrative medicine creative writing classes, how an education in narrative medicine can translate to medical settings, and how the program, with its students from many different backgrounds, is like a one-room schoolhouse.  Learn more about Catherine and Ben and check out the show notes here. Follow Made Visible on Instagram. Join our online community here. Provide us with feedback on the podcast here. 

Nov 2019

39 min

When employers come to Hannah Olson and ask her why they should hire people who have chronic illness, she has a lot to say. Hannah is the founder is Chronically Capable, a platform that connects people who are chronically ill or disabled with meaningful remote work. On today’s episode, Hannah and I talk about what it was like to balance her first post-grad job with managing Lyme disease, why the year 2020 looms so large, and what makes people with chronic illness so well equipped for the workforce.  Learn more about Hannah and check out the show notes here. Follow Made Visible on Instagram. Join our online community here. Provide us with feedback on the podcast here. 

Nov 2019

28 min

“Unremarkable.” That’s the word doctors have used to describe Beth Schrock’s test results, and it signals that her tests are coming back normal. For Beth, who has been living with nerve pain and mobility issues since 2017, this means she still doesn’t have a diagnosis for her symptoms. On today’s episode, Beth and I talk about how she’s learned to deal with pain so that it doesn’t control her life, and how she’s using her talents as an art director and photographer to make invisible illness visible.  Learn more about Beth and check out the show notes here. Follow Made Visible on Instagram. Join our online community here. Provide us with feedback on the podcast here. 

Oct 2019

40 min

In 2007, Menna Olvera was introduced to Urban Zen Integrative Therapy, a healing modality founded by Donna Karan after her husband passed away. Now, as a UZIT practitioner, Menna supports patients and clients through five different healing modalities. On today’s episode, Menna and I talk about her journey to become a UZIT practitioner, and what patients and clients can gain from integrating UZIT practices. We also talk about the importance of self care, and why it’s not selfish to be kind to yourself.  Learn more about Menna and check out the show notes here. Follow Made Visible on Instagram. Join our online community here. Provide us with feedback on the podcast here. 

Oct 2019

35 min

As Jaime Walden explains, navigating Crohn’s disease is a little different than navigating other illnesses. Long story short: you might spend a lot of time being trapped in the bathroom. On today’s episode, we talk about Jaime’s long journey to a diagnosis, how she manages the often painful symptoms of a Crohn’s flare, the emotional component of this invisible illness. This episode is the first time that Jaime is sharing a deep glimpse into her health, and she does so with incredible honesty and humor. Learn more about Jaime and check out the show notes here. Follow Made Visible on Instagram. Join our online community here. Provide us with feedback on the podcast here. 

Oct 2019

40 min

Corinne Gray was diagnosed with depression during university, but for most of her 20s, she didn’t deal with her diagnosis head on. On today’s episode, Corinne and I talk about her decision to start managing her symptoms, and what living with depression has been like for her (including her experience as a caregiver for her husband, who has leukemia). We also talk about neurodiversity and inclusion, and the central role of these concepts in URevolution, a digital magazine she started with her husband.  Learn more about Corinne and check out the show notes here. Follow Made Visible on Instagram. Join the Made Visible Community here.  Provide us with feedback on the podcast here. 

Oct 2019

35 min

For Erica Matluck, part of her job as a naturopathic doctor is to be a teacher. By providing education to her patients, she aims to make them feel empowered about their health. On today’s episode, Erica and I talk about what drove her to explore naturopathic medicine, and why she looks at the big picture of physical, mental, spiritual, and emotional health. We also chat about the philosophies of naturopathic medicine, and her belief in the connection between our minds, belief systems, and ability to heal.  Learn more about Erica and check out the show notes here. Follow Made Visible on Instagram and Facebook.  Provide us with feedback on the podcast here. 

Oct 2019

40 min

When Ashley Weiss was diagnosed with postural orthostatic tachycardia syndrome, or POTS, it changed everything in her life. On today’s episode, Ashley and I talk about the realities of living with POTS, the difficult diagnostic testing she went through, and the decision to postpone her wedding. We also talk about adjusting to life with chronic illness (including grieving for her old self), how chronic illness has opened her up to new opportunities, and why her mantra is to take things one day at a time.  Learn more about Ashley and check out the show notes here. Follow Made Visible on Instagram and Facebook.  Provide us with feedback on the podcast here. 

Aug 2019

48 min

Adrienne Nolan-Smith isn’t interested in healthcare approaches that slap a band-aid on the problem. For her, it’s about getting to the root cause. On today’s episode, Adrienne and I talk about her diagnosis with Lyme disease at age 9, and how her mom’s pursuit to find her treatment options led to some unconventional scenarios, but also helped her find remission. We also talk about the importance of root cause medicine, and how patients have to advocate for themselves in today’s healthcare system. Learn more about Adrienne and check out the show notes here. Follow Made Visible on Instagram and Facebook.  Provide us with feedback on the podcast here. 

Aug 2019

40 min

Growing up, Russell Markus didn’t understand his mom’s chronic pain, but severe knee pain as an adult made him realize the reality of what she had been dealing with for decades. On today’s episode, Russell and I talk about his shift in awareness about his mom’s experience, and how he chose to start Lily CBD before CBD was the trend it is today. We also talk about the complexities of the cannabis world, the impact of pharmaceuticals, and what people should know if they’re new to CBD but ready to explore.  Learn more about Russell and check out the show notes here. Follow Made Visible on Instagram and Facebook.  Provide us with feedback on the podcast here. 

Aug 2019

42 min

After undergoing a preventative double mastectomy in 2014, Erika Stallings told a therapist that she felt her life now had to have a lot of meaning. After all, she had just done this radical thing to save her own life. On today’s episode, Erika and I talk about why she didn’t immediately pursue BRCA testing after learning her mom has a mutation, the racial disparities in genetic testing that impact Black women, and how she navigated surgery and recovery with the help of some great friends and doctors.  Learn more about Erika and check out the show notes here. Follow Made Visible on Instagram and Facebook.  Provide us with feedback on the podcast here. 

Jul 2019

42 min

About five years ago, Martel Catalano realized she couldn’t ignore her chronic condition (retinitis pigmentosa) any longer. On today’s episode, Martel and I talk about why she decided to lean into her diagnosis and address her stress about her condition, and how she hopes Beyond My Battle will help other people with illnesses and disabilities do the same. We also talk about what it’s like to live with a visual impairment that’s invisible to others, and how she handles moments of misunderstanding.  Learn more about Martel and check out the show notes here. Follow Made Visible on Instagram and Facebook.  Provide us with feedback on the podcast here. 

Jul 2019

36 min

Interior design star Genevieve Gorder wants to live in the light, not in her illness. What does that mean, exactly? For Genevieve, who has both Lyme disease and Hashimoto’s thyroiditis, it means refusing to stake her identity in her health challenges. On today’s episode, Genevieve talks to me about the role that learning plays in her journey with Lyme and Hashimoto’s, how a home can be healing, and how she maintains her sense of positivity and remains mightier than her illness.  This episode previously aired on February 5, 2019.  Learn more about Genevieve and check out the show notes here. Follow Made Visible on Instagram and Facebook.  Provide us with feedback on the podcast here. 

Jul 2019

55 min

When Rachel Trobman was diagnosed with non-specific connective tissue disease, the rheumatologist who diagnosed her showed her that healthcare could go beyond personalized: it could be humanized. Today, that principle plays out on Ouchie, an app for pain management created by Upside Health, the company she co-founded. On today’s episode, Rachel and I talk about treating the symptoms versus the disease, and how Ouchie supports people so that they can live their lives while managing their pain.  Learn more about Rachel and check out the show notes here. Follow Made Visible on Instagram and Facebook.  Provide us with feedback on the podcast here. 

Jul 2019

34 min

When Madelaine DeRose was very young, her mom realized that she saw things differently than other kids, and Madelaine was ultimately diagnosed with dyslexia. On today’s episode, Madelaine and I discuss how people with dyslexia experience the world, and how being bilingual impacts her dyslexia. We also chat about the link between creativity and dyslexia, how she manages dyslexia in her professional life, and why she wants to correct misperceptions and raise awareness about the reality of the disorder. Learn more about Madelaine and check out the show notes here. Follow Made Visible on Instagram and Facebook.  Provide us with feedback on the podcast here. 

Jul 2019

28 min

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