The Rare Life
By Madeline Cheney
Curated by a fellow special needs mom in the trenches, The Rare Life features Madeline’s own experiences and takeaways as she parents her son Kimball who was born with several major birth defects due to his extremely rare genetic disorder, as well as conversations with other parents who share their own advice and stories of loving a child with medical complexities. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany special needs parenting. Guests will also include a variety of professionals, offering practical advice and solutions on anything from processing grief and trauma to ways to encourage language in a child with hearing and/or vision loss.